The project «The life as a miracle» of the charity foundation «Family. Traditions. Mercy»

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Dasha Vartbaronova

City: Moscow

DOB: 28 November 2008

Diagnosis:

Alagille syndrome (Congenital hypoplasia of intrahepatic bilious channels, a moderate stenosis of right branch of a pulmonary artery, butterfly deformations of bodies of vertebras, v/u oligotrophy). Postnatal hypotrophy 1 degree. A secondary malabsorption syndrome of fats. A skin itch. Formed biliary cirrhosis with initial signs of a portal hypertensia.

The help is rendered: 860 000 rub.

When: 01 March 2011 г.

Documents

In order to avoid copying of documents by swindlers, we have made decision not to publish official documents on a web-site (accounts on payment, abstracts of medical record etc.), and to give the necessary information on demand.

Present for Dasha

Dasha Vartbaronova has an Alagille syndrome. Unfortunately, the unique way to win this illness is a liver transplantation. Parents of Dasha have made inquiry in the clinic «Cliniques Universitaires St. Luc» (Belgium), there doctors are ready to accept them on operation in April, 2011. The clinic has billed for 87 000 euros. 10 000 euros more is required on payment of tickets, residing and a food in period of preparation for operation and rehabilitation. Parents of the girl suppose that they will collect the most part (77 000 euros) independently. Parents of Dasha have applied in our foundation to help to collect missing 20 000 euros.

01 November 2010

From the letter of mum

Dasha is 1 year and 11 months old. Darya has decided that it is sufficient date that parents were pleased something new. She has eaten from a porridge spoon herself. I thought that I will not wait this day. Appetite at Dasha is lowered; she eats each time with scandal. The daughter is able to handle a spoon for a long time. She spoon-feeds all adults sprained under a hand with pleasure but it wasn’t that she put a spoon to herself in a mouth. And here she has eaten herself. It is happiness. Well also that it is only 5-6 spoons. The main thing is the beginning is necessary!

26 October 2010

Updating of the sum of donations

Those who watches destiny of Dasha, have noticed that the sum of donations has considerably increased at the girl. It is connected by that we have counted the raised money taking into account the means which have transferred into other accounts. Further we will publish the total reporting.

We remind that, besides our foundation, fund raising on Dasha’s operation is conducted by parents on sites «VKontakte», «Odnoklassniki» (group «To become healthy, your help is necessary for Dasha» Vartbaronova Anna of 26 years), "Materinstvo" and on specially created site vartbaronova. narod. ru.

24 October 2010

From the letter of mum

Dasha is very creative person. She adores drawing by paints, wax pieces of chalk, and especially something badly washed off (the handle, a felt-tip pen). And she doesn’t limit flight of the creative imagination by a sheet of paper. Any surfaces approach for it. But most of all she likes to be engaged in a body art. She goes quite often dark blue, red or green — she chooses color under mood. And it is possible to creep to mum and something to draw on her. It is very cheerfully!

Also Dasha likes to dance. We switch on for her children’s songs from cartoon films. Darya is turned and waves a dress hem, shows «small lamps».

She loves to play lately with dolls, feeds them for fun, rolls in a carriage, bathes, and puts to bed. In general, though she lags behind contemporaries physically because of the illness of Dasha (when contemporaries with might and main ran, jumped, swarmed up ladders on a platform, we only started to do the first steps, have gone in 1 year and 8 months), in the intellectual plan, in my opinion, she doesn’t lag behind coevals, and some even surpasses.

Dasha loves and logic games: puts a mosaic with pleasure, puzzles. In general, she is the versatile person. But her hobby is to behave like a hooligan! To disembowel all cases, to filch from a table a bread loaf, gnaw off all crusts, and pick up holes in a crumb, both etc. and etc.