The project «The life as a miracle» of the charity foundation «Family. Traditions. Mercy»

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Roma Milyukov

City: Township Tchaikovsky of the Perm region

DOB: 16 October 2002

Diagnosis: Fankoni's anemia. Chronic nephritic insufficiency. Terminal stage

The help is rendered: 438 216 rub.

When: 31 December 2020 г.

Documents

In order to avoid copying of documents by swindlers, we have made decision not to publish official documents on a web-site (accounts on payment, abstracts of medical record etc.), and to give the necessary information on demand.

28 October 2009

Birthday of Roma was celebrated on 16 October!

We long inquired parents what Roma wants to receive as a gift on the eve of Birthday. As it was found out, fruit, water without restrictions and possibility to play snowballs with other children in the street were the most long-awaited gift for Roma.

We have chosen a gift by the strong-willed decision: designer LEGO (the machine on a control panel).

We have celebrated the Birth very cheerfully. All family collected the designer for children of 7-year-old age. And we have arranged rally in a corridor after!

09 October 2009

Roma has operated on October, 7th. Operation lasted about 6 hours. Michael Mihajlovich managing branch leaves operating room somewhere at 15:30 and, smiling, has asked mum: «Probably, have you missed the son?» Mum Julia has positively nodded in the answer. «Now we will give him to you!», Michael Mihajlovich has answered, continuing to smile.

Roma has brought to postoperative chamber in half an hour. Roma seemed such tiny on a hospital bed in comparison with the big doctors, nurses who have carefully surrounded him: a dropper, oxygen, records in a hospital card on a wall... Look in eyes of doctors, how much love in them! Operation has passed normally.

Positive dynamics is observed at Roma today. He passes postoperative rehabilitation. All, certainly, isn’t simple: a kidney from the grandmother who isn’t compatible with Roma on a blood type. Roma doesn’t run on corridors yet, but desire to live this child surprises.

We will celebrate official Birthday of Roma on October, 16th. The majority of us have one Birthday, Roma has already four: in Tchaikovsky of the Perm area the boy was born at mum Julia and father Sasha on October, 16, 2002 whom named Roma. May 2009 is resuscitation; August 2009 is resuscitation; October, 7th is transplantation of a donor kidney from the grandmother.

Let’s be hope that number 4 remains still long time (at least 30 years) constant number!

06 October 2009

We have collected money for Roma. It will be spent operation for Roma tomorrow, on October, 7th.

Since yesterday Roma, his grandmother who has agreed to become the donor, and Roma’s mum are in RNCH, they wait operation.

Roma has birthday on October, 16th! All, who will want to congratulate Roma and his parents Julia and Alexander, can send letters of congratulations on our mail.

20 August 2009

At preservation of a file with the letter of mum in the computer, it was printed instead of «Roma_6 years» — «Roma_bilet». Is it casual or not? But it is his chance, a ticket for the little boy in the big life. It is the ticket in the opposite side from that to which he necessarily goes.

Roma is very mobile and in 6 years, as well as all small children, wants to run on streets, to jump on pools, to play tag — simple children’s pleasures. To move, without thinking of needles which give him life, and about that, how many waters he can drink. It is our chance to present him the ticket in the happy childhood! And to help to receive main «diagnosis» — Happiness.

"Hello. Mum of Roma Milukov (10/16/2002) writes to you. There was a trouble in our family this year. Our boy seriously was ill. In March 2009 our son has strongly caught a cold, and it has led to sharp deterioration of health and to complications on kidneys. And when all children from his kindergarden group prepared to celebratory final and entering in school we have appeared in hospital. We were delivered on reanimobile from children’s hospital to City Tchaikovsky in the Perm regional children’s clinical hospital in nephrology branch on May, 14th, 2009. The diagnosis: chronic nephritic insufficiency of 3-4 degrees. The condition of our kid has sharply worsened, and he has got to resuscitation, kidneys have refused, pressure has risen. Then our Roma has spent 9 days in resuscitations He was alone there. Doctors did blood transfusions in this time to him, dripped preparations, and spent emergency sessions of a hemodialysis (blood clarification through an artificial kidney). They have transferred him back in nephrology branch after resuscitation. All life of the kid began to depend on hemodialysis sessions from this point. Instead of kidneys blood is cleared now by the device of an artificial kidney through the thrust needles and the attached tubules 3 times a week for 4-5 hours. It is sick, tiresome. Roma is very mobile, active child. But now he should struggle with the children’s troublesomeness, the whims and desires, he already understands that any sharp or careless movement is a pain from the inserted needles for connection to the device of an artificial kidney or needles will take off, and blood will rush, and the superfluous drunk 20 grams of water can lead to a brain hypostasis. Roma had an operation in June. Doctors sewed a fistula on a hand for formation of constant access to veins and arteries that through any time it would be possible to get constantly in it being needles. Then our son has been examined MSEK and he is recognized in his six years by the invalid in June. We live with our kid in hospital by turns now. Unique possibility for the Roma to return to more or less normal life is a related change of a donor kidney. While from the grandmother, through any quantity of years (to think through how many — it is impossible, the more term — the better) from mum or from the father. Expensive preparations are necessary for performing operation and during the postoperative period. I work as the bookkeeper in the budgetary organization, father of Roma worked as the driver in the private organization, he has been compelled to leave because of constant trips from Tchaikovsky to Perm, sick-lists to him weren’t paid, holiday wasn’t given. Our incomes can’t cover and parts of expenses for treatment. Still it is necessary to live somehow and to feed the kid, and to go on any means. There is no place to wait the help for us. We ask you about the help to our kid. In advance we thank all who will respond to our request. We do not object to use of data on the child in mass media«

The related renal transplantation is appointed to the beginning of October. For happy end of operation and increase in term of life of the replaced body it is necessary for Roma to start to enter preparations «ATG-Frezenius» and «Kempas» in cost of 438 210 roubles 21 day prior to operation (i. e. in 2 weeks). Unfortunately, these preparations aren’t present in the list financed of the state budget, parents should buy them independently. A family of Roma is in heavy financial position; they don’t have possibility to pay expensive medicines. I ask you to help to collect means for these preparations on which life of Roma depends.